violation within contemporary learning disability research remains. Ethical concerns include treatment of vulnerable populations, lack of informed consent, and benefit versus undue hardship when using people with disabilities as research participants.
accessible and inclusive research design. involving disabled people in each stage of the research process . Inclusive learning disability research has generally taken for granted the functions and skills of research supporters.
This paper traces the history of conducting research involving people with disabilities and raises serious questions about the ethics of conducting research. In cases where research involves potentially vulnerable groups, for example children, older persons or adults with learning disabilities (for those who fall under the remit of the Mental Capacity Act 2005/ Adults with Incapacity (Scotland) Act 2000 see below), every effort should be made to secure freely given informed consent that participants have actively provided.
They do not replace existing general ethical guidelines in social and policy research but supplement them by providing an outline of key issues from a disability perspective. The involvement of people with learning disabilities as participants and co-researchers and the use of visual approaches – which may be more accessible to people with learning disabilities than text-based methods – have raised further ethical issues, some of which are explored in this paper. By conducting research with participants with disabilities in these categories, we can start to ensure that digital products work for everyone.
involving disabled people. carers or their representative groups in the design, conduct, analysis and reporting of research (Research Governance Framework, s2.2.6). And often, making adjustments for those with disabilities contributes to a more positive user experience for everyone.
This case study provides an account of a civic engagement project designed to understand the legislative advocacy experiences and desires of parents of children with disabilities with respect to special education. This book contains thirteen original contributions from leading figures and newcomers on the key issues and problems in translating disability theory into research practice. Parallel calls have been made to break the mould of disability research by adopting an ’emancipatory’ approach. Our study examined the input of parents of children with disabilities for the upcoming Individuals with Disabilities Education Act reauthorization. understanding disability. These guidelines are designed to be used by those involved in funding, conducting, or managing disability research, most especially that which involves people with disabilities as participants.